My Story (Short Version)

My name is Stacie Van Brandenburg and I am twenty-four years old. When I was 12, my life was radically changed by the single bite of a tick.

(Click Here to read my full story)

Thousands of people every year become infected with the Borrelia Burgdorferi bacteria, better known as Lyme disease. Many people are lucky and the disease is detected in its early stages, where it can be treated effectively with antibiotics. Others are not so lucky, living with the bacteria in their bodies for months, even years before a symptom appears.

The illnesses and conditions I’ve developed from the bacteria affect my everyday life and are often debilitating. Over the years, doctors have diagnosed me with everything from Lyme Arthritis, Fibromyalgia, Hashimoto’s Disease, neurological symptoms such as anxiety, “brain fog” but worst of all, Excessive Daytime Sleepiness (EDS), Chronic Fatigue Syndrome (CFS) and other sleep disorders. I’ve lost count of how many antibiotics, medications and therapies I have tried over the years, all of which have been largely unsuccessful. With my father being a kidney transplant recipient & fighting cancer, my mother working to support the family, but in constant pain after two hip replacements, the cost of medical expenses has had a significant impact on our family. I began to lose hope of ever being able to live a somewhat “normal”, healthier life, but deep down inside, I knew I was not ready to end the fight against Lyme.

After exhausting all treatment options available in North America, I learned about a treatment called, “whole body hyperthermia”. The treatment is not offered anywhere in the United States, but is performed in Germany, specifically for patients fighting Lyme disease. This is not just another treatment, another antibiotic I would take and hope that it works. This treatment kills the bacteria that causes Lyme, as well as other co-infections a tick can transmit (e.g. Rocky Mountain Spotted Fever (RMSF), Babesiosis, Anaplasmosis, and others), considerably improving a patient’s physical, mental, and emotional well-being each and everyday. Most significantly, it’s effective in 100% of patients — even in those who have tried everything and have had Lyme disease for years. I now have a once-in-a-lifetime chance to become healthier by receiving an advanced, state of the art treatment in Germany. For me, the outcome to be gained significantly outweighs the potential side effects.

The only obstacle that stands between me and my health, is raising the money I need for the treatment. Being a member of the Norwood Fire Department, the dept. has generously set up a fund for my treatment and are collecting donations. All donations received will go towards my medical bills; approximately, the $40K I need to travel to Germany to undergo whole body hyperthermia. This will cover the treatment itself (which costs about €1,000 EUR/$1,300 USD per day) for three-four weeks, medications & supplements, and traveling expenses (airfare and transportation to & from airports). Along the way, you can follow me through my journey to living a healthier life before, during and after my treatment as I write about my life with Lyme at www.fightlyme.org

My goal from this treatment is not only to be Lyme-free but to be able to share my story. While my story has been extremely personal and difficult to talk about, there are thousands of other people who have their own story and millions more are at risk. It is essential to bring attention to the need of educating the public about this growing epidemic. Spreading awareness by publicizing my story, I feel, is the greatest contribution I can give. Helping others can be some of the best medicine.

 

Click here to read my full story

For more information or if you have any questions, please e-mail [email protected]

Sharing what it is like to live with Lyme disease & other chronic illnesses to spread awareness; health advocate;

7 Comments

  1. Well done. Let’s get that money together for you.

  2. Thanks so much for following NC Lyme Advocacy Blog!

  3. This sounds interesting. I would love to hear how it goes! Especially since I’ve been DYING to go to Germany as I am like 75% German, this would make a perfect excuse to go. =)

  4. Hello, My name is Bill Peace & was infected in 1999 in Califorina & went undetected for 14 years . I went through the same STUFF you went through BUT I hurt my back on the job in 2000 Talk about a NITEMARE . I know you want to help us Lymies but all the people that I know are broke & poor . We need a treatment that EVEYONE can afford . I can’t even find a LLMD that will take insurance !! Cash only & a lot of it !! So I hope that your trip is a positive one so we can get the cost down, so we all can be healed or should I say MANAGE it better . Peace

  5. Hello Stacie! I am a 24 yr old like yourself.. Dealing with severe lyme symptoms for over a year, was bitten when I was 9 in New Jersey, and again when I was 21 in California where I currently reside…

    I have severe neurological pains, and aches, mental and cognitive changes, and all the like as you… I also developed something called conversion disorder where my mental emotions were released and played out from my CNS system which was a challenge in and of itself as well.. adding to the pain and fatigue..

    I did however find awesome treatment options and can forward you to a great wealth of information and support.

    here is the link to the site

    http://www.mdjunction.com/lyme-disease

    Also for myself what I found to help was an incredibly clean diet and nutrition, and plenty of good exercise when I could manage, as well as lots of rest, and sleep.. Detoxing is important as well..

    Chris Kresser has a site that has everything you would ever need in regards to nutrition and would help on your path to healing google him to find more about it, also I found this interesting article that really helped for myself..

    http://drlwilson.com/articles/copper_toxicity_syndrome.htm

    Also always make sure you have adequate b vitamin levels as Lyme can deplete both B vitamin and vitamin D levels..

    I get regular b12 shots to help my nervous system and for healing, get your b12 levels checked and look into it..

    I also found the perfect antibiotic substitute for lyme which is supposed to be even stronger then antibiotics its called Prima Una Gato by Nutribiotics its a TOA free form of an herb called Cats Claw, extremely well known for treating chronic lyme and other conditions…

    My other supplements include Methyl Folate, Vitamin D at 2000mg a day, Vitamin C 1000 three times a week, Fermented fish cod oil (best supplement you could invest in) by brand name green pastures, Turmeric for pain, inflammation and herxing, and grapefruit seed extract for added lyme treatment..

  6. good luck with your journey!!! Ten years undiagnosed…almost 2 years now on herbal treatments and plenty of exercise…you will find what works for you and reach you mountain top!!! stay strong!!

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