Why I started a blog/What is Lyme?

I’ve been writing for 5 months now and realized, I’ve forgotten to talk about to some very important, essential things.

Why did I start writing this blog?

This answer is quite simple.

Odds are, you have figured out– my name is Stacie and I have Lyme disease. 

Believe it or not, I kept this a secret for a while. I was first diagnosed when I was 12 and didn’t know much about it.

I thought to myself, “Great. I got bit by a bug and have a disease…and I’m going to need physical therapy when I’m 30? That’s okay because I’ll be old by then.” I laugh at myself for ever thinking that- especially now that I’m 24 = 6 more youthful years left

I started telling people as I got older that I had Lyme disease, casually. Most people knew what I did in elementary school. “So you got bit by a tick, took some antibiotics and now you’re fine.” No big deal…

What I didn’t say was, “Yes, I have Lyme disease and you get it from a tick. Most people are okay after they receive antibiotics. However, I’m not one of those lucky ones. Due to living with a bacteria in my body for so long, has actually made my life a living hell.”

After exhausting all treatment options available in the U.S. and thousands and thousands of dollars for my medical expenses, I faced a very difficult decision. This was a very big step for me..and I still have a hard time with this, but I knew if I really wanted to get better, I had to ask for help.

If I was going to put my story out there for the world to see, I should make the most of it. I’ll tell it, not only to ask others for help, but so I could help them. I’m going to tell everyone my story so that no one ever experiences it.

Why did I keep writing?

I’ve always hated writing. I am horrible at spelling, grammar and vocab- But I hated it mostly because I had the most difficult time in college with my research writing class.

Here, my writing isn’t being graded. I don’t have deadlines. If I don’t feel up to writing, I don’t. I would have never imagined that this would become one of the best stress relievers for me, but best of all, is that I have received such an overwhelming amount of support that keeps me determined to Fight Lyme. People within the community or someone who I’ve never met, living on the other side of the world, have only had the kindest things to say. Not to mention, I myself have learned SO much more about Lyme disease- from other people’s stories and experiences, to new places & resources I could get information from.

Last, but not least, my blog will always be there to remind me just how far I’ve come- and on the days I feel like giving up, I know that I’m not alone. I have an entire support system to help me get back up after I fall and I need to be there for when someone else needs a hand too

What is Lyme disease?

Whenever someone asks me this question or asks about “my story”, in a matter of seconds I think, “Oh man…how do I even begin to explain this; where do I begin my story; I don’t remember what I wrote- it’s 12 years compressed into a page or two; what’s the most important info to tell them; will they even understand what I’m saying?” Yeah…this all goes through my head at once.

Before my “brain fog” really sets in, I leave you with this- in honor of Lyme disease awareness month, I’ll be compiling all that I know about Lyme disease from ‘experts’ and from living life with Lyme. If you question what I know or think I know- Good! I studied Public Health and all my classes stressed the importance of analyzing scientific studies- what makes information reliable, trustworthy, from a credible source, etc. I’m not an expert. I don’t know everything- and when it comes to Lyme, the entire world has an opinion about it, creating such controversy and uncertainty (which is what I hate most, the uncertainty!)

But before I get into the info I do know, all the complexities of this disease and the controversy, take the time and see what you can learn about Lyme!

Sharing what it is like to live with Lyme disease & other chronic illnesses to spread awareness; health advocate;


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