Yesterdays Lyme Chat, as well as this Sunday’s chat on October 27th (8pm EST/5pm PT), the topic being discussed is ‘symptoms’
‘Symptoms’ I know is a broad topic, so if you have any suggestions as to what questions you would like asked this Sunday or any suggestions at all, please let me know!
How the Lyme Chat works
In case you are not familiar with this: to participate in the Lyme Chat, all you have to do is follow @FightLyme on Twitter. Every Sunday at 8pm EST/5pm PT, log on to Twitter and get ready to respond to the questions posted! You can join in any time, so don’t worry if you miss the first couple of questions. In case you miss it, the questions and responses I’ve gotten, as well as my own, will be posted here!
When responding to a question on twitter:
Specify which question you’re responding to (Q1: is answered A1: ) & add #LymeChat to each tweet
How long is the Lyme Chat?
There is no set time as to how long the chat will be. It depends on how many people are participating and the discussions we are are having with one another- you are free to join in and leave whenever you choose- the chats in the past usually last about an hour to an hour and a half- but the Lyme Chat will always start 8pm EST
How many questions are asked during each Lyme Chat?
It varies- I have been thinking about setting a specific number of questions to ask each night- however, what I have been doing is writing out the possible questions to ask prior to the chat Sunday- some nights some I decide not to ask, some are answered by a previous question that’s asked- so it can be anywhere between 4 questions or 10 questions. The participants and myself may discuss one question longer than another question.
Last night I only asked 6 questions and the Lyme Chat lasted until about 9:30pm EST- I love that even if I’m not asking questions anymore, participants will often continue a conversation with another participant, or they may call it a night too! It’s great that Lymies have been able to meet and talk with other Lymies, after the chat is over!
Here are the questions from last night:
Q1: This past weekend there was a full moon! Do full moons have any affect on your mental and/or physical health? If yes, how? #LymeChat
A1: I’m not sure yet if the full moon affects me (i’m now keeping track of my daily symptoms), but I was very cranky that day! #LymeChat
Q2: What symptom(s) did you experience prior to your diagnosis? What stage (of Lyme) were you diagnosed in? #LymeChat
A2: Reoccurring fevers, the flu (multiple times), every classic symptom, then my knee swelled up; ‘Late Stage Lyme’ #LymeChat
Q3: Did you have (an) erythema migrans, otherwise known as the “bulls eye rash?” #LymeChat
A3: I never had any rashes, unless when I was infected (which I was 2x) it may have been on my head, under my hair #LymeChat
Q4: What is the most unusual symptom you have experienced? #LymeChat
A4: My most unusual symptoms- all neurological stuff; one time forgot where I was, even though I had been there many times before #LymeChat
Q5: What symptom(s) do you think people don’t usually associate with Lyme disease? #LymeChat
A5: Any & all neuro symptoms; I think stating just fatigue & joint pain completely underestimate how those actually affect you! #LymeChat
Q6: What symptoms have resolved? What symptoms are you still suffering from? #LymeChat
A6: I don’t have panic attacks anymore (again knock on wood!) but think that’s from talking to someone; fatigue is the worst #LymeChat
The answers posted in italics were my own responses– again I’m hoping to give those that aren’t too familiar with the Lyme Chat/Twitter an idea of how it works.
Feel free to post your responses below!