Update on Lyme Chat

Last year I started Lyme Chat, which I held Sundays at 8pm EST/5pm PT.

To make the chat better, I asked people to answer this quick survey (please click here and take the survey if you haven’t! It’s only 5 questions and all responses are anonymous!)

I’ve decided (based upon the responses I’ve gotten), that one thing is certain, this date/time does not work for people.

I will be moving the Lyme Chat to Monday nights (time has yet to be determined) and it will only be the first Monday of the month instead of weekly.

Here are the dates of the Lyme Chat for 2014:

  • 4/7
  • 5/5
  • 6/2
  • 7/7
  • 8/4
  • 9/1
  • 10/6
  • 11/3
  • 12/1

I also wanted to clarify some information based upon the responses I’ve gotten from the survey.

The reason I created Lyme Chat, is to help connect individuals who are living with Lyme disease, other tick-borne illnesses and chronic illnesses across the world to one another. Sometimes it can be very lonely living with a chronic illness and unfortunately there are so many misconceptions of what it’s like to live with one…

Living with an invisible illness

The people I’ve met have become another family of mine to me. It’s nice to talk to others who can relate and understand what you are going through. They have gotten me through such hard times and all the difficult days- I only hope I have and can continue to do the same for them.

I stress that people only share information if they are comfortable doing so. Lyme disease is always a personal story and it took me many years to open up about mine. If you do not wish to share information, I understand and would never want to make anyone feel uncomfortable.

When information is shared, I do not do anything with it. I will put together a Storify of the Lyme Chats (if anyone does not want to be included in them, I will be sure that they are not), but only so that people who have missed it and for those who participate in them can go back and re-read them. It’s only to connect individuals and help us on our journeys to recovery.

Sharing what it is like to live with Lyme disease & other chronic illnesses to spread awareness; health advocate;

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